Passy-Muir Inc.

Tracheostomy & Ventilator Swallowing and Speaking Valves

The following article was written by David and published in "A Positive Approach," a magazine for disabled persons and their families. Jan. 1990.
I am a quadriplegic. I have muscular dystrophy. In February 1984, I suffered a respiratory arrest. I had just completed a tough semester and was starting another. This period was very difficult because it seemed as though, no matter how much sleep I got at night; I was exhausted every morning. Apparently, the arrest was coming on for a month, but I wasn't aware of how serious the sleepiness was.

One day, my mom decided to let me sleep in because I was so tired; she planned to do some shopping while my grandmother stayed with me. Mom told me later that just as she was closing the door, she had a feeling that something was not quite right with me. My mom discovered me. I was blue and barely breathing so she pushed the Medic-Alert box. The paramedics arrived about ten minutes later; they intubated me and rushed me to the hospital.

A day or two later, I woke up. The first thing I noticed was a room full of balloons and my family all around the bed. It was a strange but reassuring sight. I was wondering what was I doing here and why I couldn't talk. My mouth was incredibly dry and my nose and throat were sore from being intubated. I became painfully aware of the importance of speech when I wasn't able to communicate even the simplest of needs. I remained optimistic. After all, how long could this last?

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