Patient Stories

In March of 2011, Althea acquired a rare condition known as Guillain-Barré Syndrome, which attacks the nervous system, causes paralysis, and affects breathing. In the early stages of her illness, she had a great deal of difficulty communicating with family and caregivers. Because she was nearly totally paralyzed, she was only able to communicate with a letter board, a crude and time-consuming process.
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Grady was born premature with intraventricular hemorrhage and severe bronchopulmonary dysplasia (BPD). At Nationwide Children's in Columbus, Ohio, he began using the PMV® 007 in-line with the ventilator. The Passy-Muir® Valve helped Grady participate in feeding and speech therapy.
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My name is Kelly McCann. I’m 26, and have been a ventilator dependent quadriplegic for 22 of those years. During those years I’ve experienced a lot of adventures and a lot of falls too, but as they say, if we didn’t fall, we wouldn’t learn how to get back up and keep fighting.
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Cooper and his triplet brothers were born 4 months prematurely, on June 5, 2007, at only 24 weeks gestation. Cooper weighed 1 lb., 6 oz. at birth, and spent the first six months of his life in the NICU. His biggest issue was tracheomalacia, and he came home with a trach.
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I have now used the PMV for 18 years. It has allowed me to continue to give motivational talks to various groups, teach a weekly class in church, counsel people, talk on a speakerphone to friends everywhere, use voice recognition software.
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Tommy Derekson was born 9/25/06, seven weeks premature. He has congenital heart defects and swallowing difficulties. He has been trached since he was two months old for failure to extubate following heart surgery.
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When Samuel had to receive the trach for life saving measures we never realized we would not hear his sweet little voice again, until he came back and we saw him cry but heard NOTHING.
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Our daughter Eleanor was born with an undiagnosed neurological disorder. Due to tracheamalacia, she has been trached since birth, so we never heard her cry or make any noises.
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