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Patient Stories

Erasmo was diagnosed with Guillain-Barré syndrome on May 5th, 2010. Guillain-Barré syndrome is an inflammatory disorder of the peripheral nerves outside the brain and spinal cord (GBS/CIPD Foundation). He arrived at Madonna Rehabilitation Hospital May 25th in an extremely debilitated and weak condition. The Passy-Muir® Valve was placed in his ventilator tubing, allowing him to speak and communicate with his nurses.
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Butch came to Madonna Rehabilitation in 2010 with a diagnosis of Respiratory Failure after a prolonged acute hospital stay where he was unable to communicate, unable to eat by mouth, and received all nutrition via a gastrostomy tube. On the second day of his stay at Madonna Rehabilitation, the speech-language pathologist completed a Passy-Muir® Valve assessment and swallowing evaluation.
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Rebekah has Trisomy 18 and wasn’t even expected to survive to birth and, when she did, we left the hospital at 6 days old on hospice care, not uncommon for trisomy 18 patients. But she did survive!
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Grady was born premature with intraventricular hemorrhage and severe bronchopulmonary dysplasia (BPD). At Nationwide Children's in Columbus, Ohio, he began using the PMV® 007 in-line with the ventilator. The Passy-Muir® Valve helped Grady participate in feeding and speech therapy.
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My name is Kelly McCann. I’m 26, and have been a ventilator dependent quadriplegic for 22 of those years. During those years I’ve experienced a lot of adventures and a lot of falls too, but as they say, if we didn’t fall, we wouldn’t learn how to get back up and keep fighting.
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Cooper and his triplet brothers were born 4 months prematurely, on June 5, 2007, at only 24 weeks gestation. Cooper weighed 1 lb., 6 oz. at birth, and spent the first six months of his life in the NICU. His biggest issue was tracheomalacia, and he came home with a trach.
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I have now used the PMV for 18 years. It has allowed me to continue to give motivational talks to various groups, teach a weekly class in church, counsel people, talk on a speakerphone to friends everywhere, use voice recognition software.
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Tommy Derekson was born 9/25/06, seven weeks premature. He has congenital heart defects and swallowing difficulties. He has been trached since he was two months old for failure to extubate following heart surgery.
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When Samuel had to receive the trach for life saving measures we never realized we would not hear his sweet little voice again, until he came back and we saw him cry but heard NOTHING.
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Our daughter Eleanor was born with an undiagnosed neurological disorder. Due to tracheamalacia, she has been trached since birth, so we never heard her cry or make any noises.
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